Welcome to this blog. This blog is a place where we can express thoughts and feelings ... maybe to share them with other like-minded people. For those who are NOT like-minded (and we've seen a few comments), please will you just leave? Your lack of understanding of our situation in life is not welcome. Please take your words and go elsewhere. For those who may accidentally stumble across this blog AND who know us in real life, please contact us directly to see how we are doing. Do not rely on this blog to inform you. Thanks!

Sunday, June 28, 2009

Under the tree - June 2009

We're cheating this month -- Craig and I are both completing our profiles. See below.

MIRNE'S PROFILE

Hair colour: mousy blonde, with weird white streaks in it (that's why I like getting blonde highlights)

Eye colour: green

Profession: lawyer

Relationship status: married

** My favourites ...?

Favourite color: red

Favourite movie: I have several, but probably "A Room With A View"

Favourite animal: (currently) my cat Blair

Favourite store: (currently) my local English language bookstore, Waterstone's

Favourite childhood memory: nope

Favourite hobby: reading

Favourite song/singer: I don't know ... but I am a huge fan of (i) George Michael and (ii) U2, and have been since the 80's

Favourite book/author: too many to list (my husband and I have about 1500 books between us) but Bernard Cornwell is a fave at the moment

Favourite school subject: history ... a love carried on to university (and check out Bernard Cornwell's books --- all historical novels)

Favourite vacation destination: having travelled to nearly all the continents, I would say (surprisingly) the USA

Favourite food: yummy Indian

Favourite restaurant: (currently) my local Indian restaurant
** This or that ...?
Coke or pepsi:  caffeine free diet coke
Beer or wine:  definitely wine
Coffee or tea:  coffee
Apple Juice or O.J.:  neither, give me a tomato juice please
Summer or winter:  summer
Cats or dogs:  both
Salty or sweet:  both
Plane or boat:  train please
Morning or night:  morning (I think ...)
Money or love:  love
Breakfast or dinner:  dinner
Forgiveness or revenge:  depends ...
House or apartment:  currently an apartment, but looking forward to a house once we leave Amsterdam
Like to cook:  nope, like to watch my husband cook
** Have you ever ...?
Got a speeding ticket:  too many
Wished you were someone else: yes
Cried during a movie:  too many times
Describe yourself in one word:  tall
Biggest fear:  burying another child
Biggest mistake:  not marrying my husband 10 years earlier
Your proudest accomplishment:  my daughter Freyja and my son Kees
Dream job:  stay at home mum
Special talents:  making my husband's life happy
Where would you rather be at the moment:  in a place where my son and daughter are with me
Famous person you want to meet:  Bill Gates
Song to be played at your funeral:  I don't want to plan another funeral ever
CRAIG'S PROFILE
Hair colour:  dark brown/black
Eye colour: brown

Profession: radiographer, currently in medical research

Relationship status: happily married

** My favourites ...?

Favourite color: blue

Favourite movie: can I list about 100??? Probably Star Wars (all 6), I Am Legend (the alternate ending) or Music and Lyrics

Favourite animal: Blair (our cat)

Favourite store: Waterstones

Favourite childhood memory: going on a train trip with my father and getting to drive the train (he was an engineer with New Zealand Railways)

Favourite hobby: Land Rovers and building things with my hands

Favourite song/singer: song: Amaze Me by The Lovers, artist: Eurythmics or Pink Floyd or U2

Favourite book/author: Peter F. Hamilton, especially the Night's Dawn Trilogy

Favourite school subject: Physics, and Ancient History

Favourite vacation destination: United States, in an RV

Favourite food: Thai, Indian, Cajun cooked properly

Favourite restaurant: The Taj, Melbourne
** This or that ...?
Coke or pepsi:  coke
Beer or wine:  G&T
Coffee or tea: coffee
Apple Juice or O.J.:  neither, another coffee please
Summer or winter: yes
Cats or dogs: both
Salty or sweet: both
Plane or boat:  boat, plane if I'm the pilot
Morning or night:  neither
Money or love:  I have love, so I'll take the money next thank you
Breakfast or dinner: both, and lunch as well - I need 3 my squares a day!
Forgiveness or revenge: revenge first, then forgiveness if I feel like it
House or apartment:  a house in the country, and an apartment in the city for visits
Like to cook:  absolutely
** Have you ever ...?
Got a speeding ticket: yes
Wished you were someone else: yes
Cried during a movie: yes
Describe yourself in one word: average
Biggest fear: Mirne dying
Biggest mistake: not marrying Mirne earlier
Your proudest accomplishment: marrying Mirne 
Dream job:  filthy rich retirement
Special talents: I can make my wife smile when she's feeling down
Where would you rather be at the moment:  on a beach drinking pina coladas in the sun with Mirne, Freyja and Kees
Famous person you want to meet: God - I have a few choice words to say to him, and I don't think he's going to like them!
Song to be played at your funeral:  "Forever Young" by Alphaville

Friday, June 26, 2009

A rainbow baby?


Recently I have come across lots of references to "rainbow babies" --- those babies who are conceived and carried and born after a lost baby. A rainbow after the storm.

Rainbow babies are greatly treasured ... of course. Not just because they are rainbow babies, but also because they are special and beautiful babies all by themselves.

It seems to me that rainbow babies are often coveted. Coveted by those babylost mamas who are often desperate to hold a child in their arms after their loss -- and are desperate to conceive as soon as possible after their loss.

I'm writing this because I know how those babylost mamas feel. I am one of those babylost mamas. In fact, I'm a twice-over babylost mama. I've had these feelings. I've wanted desperately to conceive as soon as possible after I lost Freyja. And then again after I lost Kees.

I had many covetous thoughts during the time following my losses, but before I managed to convince my husband that we should try to conceive again. (It took me about 8 months each time to convince my husband that we should try to conceive another baby.) I was jealous of every pregnant woman I saw. Or heard of. Even other babylost mamas who became pregnant.

I was jealous of everyone. I couldn't look at mums on the street without wanting to scream "WHY?" Why me???

I was a green-eyed monster.

Don't think that the jealousy has just gone away. Oh no. It's still there. Whenever I see mums or dads or families -- with one child, or two, or even three these days.

I am a mum to two children - who should be living. They should be living with me. They should be poking my belly now and speaking to their little baby brother. I should be deprived of sleep because of my two young children. I should have a 16 month old toddler getting under my feet and a near 3 year old (next month is her third birthday) telling me what she wants to watch on tv. That should be my life. My family.

Instead I'm consumed with jealousy. Of other people and their families. And I am filled with RAGE that I don't have my family. That I've been deprived of all those normal family things that everyone else complains about -- as if I should be grateful that I get an uninterrupted night's sleep. Right. (By the way, I usually don't get an uninterrupted night's sleep -- the death of your children does that to you.)

And these are all reasons why babylost mamas yearn for their rainbow baby. They yearn for a baby to hold in their arms. To love. To marvel over. To be a parent to. Because although I love my daughter Freyja and my son Kees -- so so much -- I will never be able to marvel over them again and I will never be able to parent them again. They are a part of my past, and they form a part of my present, but they are not a part of my future. Only a rainbow baby can be a part of my future.

But sometimes a rainbow baby is not the answer. A pregnancy after a loss is not the answer. A pregnancy after a loss will often give us a reason to hope again ... it will give us a reason to look to the future ... but sometimes rainbow babies don't turn out to be rainbow babies after all.

Because rainbow babies are supposed to live. They're supposed to be the calm and beauty and the promise after the storm. But sometimes they're not.

My son Kees was my rainbow baby. My daughter Freyja was stillborn on 25 July 2006. For no reason. I wanted to conceive another baby immediately. But my husband did not. He was worried about me. He was worried what another loss might do to me. He was worried that another loss might destroy his wife ... But I managed to convince him. I convinced him that nothing would go wrong with our rainbow baby. That the pregnancy would be fine. That we would be fine. Oh, how wrong I was.

My son Kees was conceived in our third month of trying. I had a good pregnancy with him ... except for the anxiety and fear I had. He was induced at 37 weeks and was born a healthy 3.5 kg baby. And he was the light of our lives -- our beautiful rainbow baby boy. Until he unexpectedly died when he was seven weeks old.

Sometimes rainbow babies are not the answer. I don't know what the answer is, but sometimes a rainbow baby is not it.

If there are babylost mamas out there who are envious of me -- because I'm PREGNANT -- think again -- and maybe direct your envy towards someone more deserving of it.

I dare anyone to want to walk a day in my shoes -- even those who think they'll do anything to be pregnant.

A pregnancy -- every pregnancy -- is special. But not all pregnancies end with calm and beauty and promise. Some end in absolute tragedy. You know when you think you've hit rock bottom? When you think that your life could not possibly be worse? Well -- I can tell you now -- it could be.

I am, and probably will always be, jealous of mums on the street. Of those mums and dads who got to keep their babies. Of those mums and dads who got to see their babies grow up. Who got to take their babies to kindergarten and to school and who got to teach them to ride a bike and to drive a car. Oh yes, that jealousy will never go away. I will never get to do any of those things with my firstborn, Freyja, and with her rainbow baby brother, Kees.

Today I am 29 weeks pregnant with my third child. My second son. My final child. He's not a rainbow baby. I don't think there's a description for a third baby after the first two babies have died.

But I'm not counting on calm and beauty and promise.

I just want him to live. I just want to be a mum to him. I want to cuddle him. I want to hear his first word. I want to see him take his first steps. I want to see and do and experience all those things that other families get to experience.

I just want Craig and me and this little baby boy to be a family.

Thursday, June 25, 2009

Obstetricians, cats and visitors



We've been back at home for 5 days now. Back from our Italian vacation.

This morning we visited the obstetrician -- always a bit of a drama.

We chose to go to a different hospital for this pregnancy. We didn't have any good experiences with the doctor/hospital in Amsterdam for my pregnancy/birth with Kees. So this time we have to catch a tram and then a train and then another tram to the hospital we've chosen for this little one (we don't have a car). About an hour and a half, door to door.

Fortunately this visit we did not have to wait. The previous two visits we've had to wait about an hour and 15 minutes every time. These waiting times are incredibly stressful to me. I'm in a room full of women and children and babies and pregnant bellies -- I feel my blood pressure rising with every minute that I have to wait. At our last visit my blood pressure was so worryingly high that I had to provide a urine specimen just in case there was a question of PE. Of course there wasn't -- it's just stress.

This visit was good. We didn't have to wait. The nurse immediately picked me out of the line for my blood pressure check and weight check. BP and weight are good. Then we only waited for about 5-10 minutes for our ultrasound. Everything looked good. This little boy is (as expected) bigger than babies of his gestation should be. He was pretty active throughout the ultrasound. Then we went for another wait (10-15 minutes) for our obstetrician. She was pretty prompt too. All we really did with her was discuss options. In the end we managed to pin her down for an induction at 38 weeks. I'll be going in to the hospital on 28 August, although I don't expect that this little one will make an appearance until 29 August (if he's anything like his brother Kees).

So that's pretty exciting ... a date for a birth! Let's hope we can keep this date.

:::::::::::::

Our cat, Blair, was ecstatic when we came home from our Italian vacation on Saturday evening.

The apartment was absolutely COVERED in orange cat fur -- you'd imagine there was a tribe of cats living there instead of one small furry animal ...

Blair played the clingy, abandoned cat for a few days but seems to be back to normal now. Thank goodness. He's fairly pathetic when he's clingy.

We received an email report from the cat sitter saying that after the first few days, Blair did not take our vacation (ie. his abandonment) well. From the sounds of it, he turned slightly rabid, and the cat sitter had to tempt his taste buds with fresh fish to be able to sneak out of the apartment every day. Fortunately he hasn't tried any of his rabid antics with us.

Other than a long weekend in the UK next month we don't have any trips planned in the near future, so Blair can rest easy.

:::::::::::::

We got an email from Craig's aunt in NZ last week, in which she announced her intention to visit us in September. Her initial dates were the end of August --- oops! So when we got back to Amsterdam, Craig emailed her the news that we were pregnant and I was expecting to give birth at the end of August. Then he rang her the next day just to confirm she wasn't booking flights just yet. She was surprised at our baby news and was happy to tack her Amsterdam visit to the end of her European trip. So she'll be here at the end of September.

I spoke to my parents when we got back to Amsterdam -- they've been visiting family in Queensland, Australia. They are still there now. Anyway, my mother announced her intention of (maybe) coming to visit in early October. I was very surprised as I didn't think she'd ever come to visit us in Amsterdam again. My parents are both retired and don't have lots of money! My mum came last year in March, when Kees was in the NICU in hospital. She arrived in Amsterdam on the morning that he died -- she got to meet him and hold him then. So I guess this time she doesn't want to take any chances -- if this grandchild is born alive, she wants to see him too!!

So a week ago we had no inclination of the visitors we'd be receiving -- now (if this baby lives) we'll be receiving two visitors from the other side of the world when this baby boy is about 4 weeks old!!

Yay!!!




Friday, June 19, 2009

Kees' eulogy

For some time now, I've wanted to post Kees' eulogy here on my blog. Craig and I wrote it together in the few days leading up to his funeral at the beginning of April 2008.


This piece of writing describes Kees perfectly and is great because we wrote it together when Kees was uppermost in our minds. Craig and I read it together at Kees' funeral.


I hope it gives you a clear impression of our beautiful son, Kees.


--------------------------


Most of you here today do not know Kees. You did not meet him, you did not hold him, you did not see him except in photographs. We want to share something of him with you, so that you know how special and beautiful he was.


As you all know, Kees’ sister Freyja was stillborn in July 2006. When we got pregnant with Kees, Freyja’s death meant that we suffered a lot of anxiety and fear throughout the pregnancy. The main way we coped with this fear was to buy a doppler so that we could listen to his heartbeat every morning and evening. We soon learned to tell the difference between his resting, sleeping heartbeat and his more active times. He was usually more active in the late evening, usually when we were trying to get to sleep – which wasn’t so bad for Craig but made it a bit difficult sometimes for Mirne (which of course made it a bit difficult for Craig also).


We chose to have an induction at 37 weeks. This did not go smoothly, but we had no regrets. When we were presented with a breathing wriggling baby, all we could do was cry with joy. The hospital staff all looked at us like we were slightly batty.


He was a big baby, even though he was 3 weeks early. One of the nurses actually commented the next day that he must have been a week or two overdue, and did not believe us until she had checked the notes for herself that he was in fact underdue.


We had already seen on the ultrasounds before his birth the Kees had inherited Craig’s nose. It was too big for him, but he grew into it nicely (Freyja had Mirne’s nose). Sometimes when we looked at Kees it was scary how much he looked like Freyja. The day that we took Kees home it snowed.


The first weeks were a bit tough on us, with him wanting to feed every 2 hours or so. We chose to bottle feed Kees so that we could both share the special feeding times. We found that we needed to take cat-naps during the day, which never really worked very well for Mirne and usually ended up with Kees sleeping on Craig’s chest. Craig started to do more of the night time feeds, as he was going to be a stay-at-home dad when Mirne returned to work and needed to get into the routine. We soon discovered that the reason he was feeding so often was that he was growing at an extraordinary rate. In his first 4 weeks he put on 1.2 kilos. Over the next 17 days he put on another 900 grams. He was going to be big.


Kees, Mirne and Craig soon settled into a comfortable routine. Sometimes Kees had sleeping days where he slept all day, waking only to feed, and sometimes he had wakeful days where he wouldn’t settle unless he had a dummy, which he normally disliked intensely, and was rocked by one of us. Kees looked like he was going to be a thumb sucker, and we were praying for bodily coordination soon so that he would actually find his mouth with his thumb more often than one time in twenty.


Kees had a beautiful smile, and Craig would often play with him and pretend to gobble up his nose repeatedly just to see that smile and to hear his little laugh. We were convinced he was going to become an artist or an art critic, as he was always looking at our paintings and other pieces of art hanging on the walls in our house. He had his favourite pieces in various different rooms.


Our various parenting books said that around the six to eight week mark Kees would begin making noises other than cries. Our little boy had a variety of sounds that he had been making from about one week. One of his favourites was to bleat like a sheep. He had a special gift, which was to drink a bottle at 2 or 3 in the morning and then to fall asleep and bleat loudly for the next 2 or 3 hours until his next feed, causing us many sleepless nights. His other special gift was to wake us up screaming about an hour after a feed, only to be picked up, still screaming, burp or fart loudly, then fall instantly back to a quiet sleep. Of course, we were by then both wide awake, and would take another hour or so to get back to sleep, just in time for the next feed.


Kees, like many other babies, didn’t like being dressed. However, he loved his baths. At first when we gave him baths he used to float in there and seemed quite content. Towards the end, when he was heading for 6 kilos, his bottom used to sink like a stone to the bottom of the bath. We decided to take him into the shower with us, and although he seemed a little surprised at first we certainly got no complaints.


Just before he was born we invested in a heavy duty jogger/stroller. We hired a basinet for the stroller, having been advised that newborns should be in the basinet for up to 6 months. However, after a bit of research and given the rate of his growth, he was only in the basinet for about 4 weeks and was quite content being strapped into the stroller in his arctic-weight sleeping bag. Kees was a real Amsterdam boy, and loved cobblestones. We could walk around for hours over the cobblestones and be perfectly happy, but dare we go into a shop with a smooth floor and he would instantly wake up and start screeching, only to stop as soon as we were back outside on the cobblestones.


At the hospital, we were told that he should wear hats to ensure that he didn’t lose too much body heat. Kees had other ideas. A hat was good until it slipped down over one or both of his eyes. Then it stopped being fun, and had to be repositioned IMMEDIATELY. After 2 or 3 weeks of this the hats came off. The gloves, however, did not. Given the previously mentioned predilection for thumb sucking combined with the lack of coordination and his long fast-growing fingernails (which Mirne filed several times a week), Kees was often seen about town with socks over his hands and going up his arms. This was so he couldn’t pull them off. We did purchase some special mittens, but these were way too easy for him to remove. If we wanted him, and therefore us, to get any sleep at night he had to have his socks on, otherwise he would wake himself and us by clawing at his face and eyes trying to get his thumb and mouth in the same place and wake up the next morning with bloody scratches all over his face. He often squawked because he had stuck a finger into an eye.


He grew out of clothes so quickly that Mirne had to rearrange his wardrobe on a weekly basis. If she hadn’t done this we were worried that he might have missed out altogether on some of the wonderful clothes that so many people had bought for him. He was so strong that he did push-ups on the day of his 4-week check-up and he was able to support all of his body weight on his legs. Of course, he didn’t yet have the balance to match so needed a little help in that area.


He also had the gift to pee and poo on us during changes. He only got us once each with the poo, and only a couple of times each with the pee, before we learned the correct techniques to avoid it. He did, however, do the most amazing vomits on a couple of occasions. Most notably, he managed to completely drench Mirne in baby-puke twice, resulting in a complete change of clothes for both mother and son.


When Kees was born we found that he liked to be sung to when he was upset. The problem was, we only knew one nursery rhyme – twinkle twinkle little star. Craig tried "We are the champions" by Queen, but it just didn’t have the same effect. Subsequently, Craig made up his own version of "Twinkle twinkle little Kees" to great effect. Many nights we sat up with our little boy singing these to him to calm him down.


On the morning of the Wednesday 19th of March, Craig fed Kees at 6 am. He went back to sleep, and Craig went downstairs to clean up. At about 7 am Craig heard him grumbling a bit over the baby phone, so he went upstairs and took him back downstairs with him so that Mirne could sleep. Craig changed his nappy, and he looked like he was going back to sleep on the change mat so Craig left him there. Craig went to the toilet to pee, and when he came back at 7:30 am he wasn’t breathing. Craig screamed for Mirne, and started CPR. She called the ambulance, and then went outside to meet them. Two policemen arrived, and one of them took over the compressions and counting, and told Craig when to breath. Then two ambulances arrived, and the paramedics took over, closely followed by the helicopter medical team. It took them an hour to revive him, mainly due to trouble with intubation. When we got to the hospital his heart was beating on its own, but he was only breathing with the aid of a machine. We were told that due to the lack of oxygen for such a long time he would likely have massive brain damage. He never recovered consciousness, and our boy was never with us again after that.


On Friday the 21st, at 12:20 pm, his ventilator was switched off. He was lying on his tummy on Craig's naked chest, just the way he used to do, and Mirne was lying next to Craig. We were both holding Kees and holding each other. Twenty minutes later the doctor came in and told us that they had seen on the monitor that his heart had stopped beating, and that he was now dead. For us he had already been dead for 2 days, and we had just been saying goodbye.


On the flight to Adelaide from Kuala Lumpur, the head purser told us that in his religion, Hinduism, they believe that when a young baby dies or is stillborn that they have paid for all of their sins in their last reincarnation and that they only came into the world to fulfill the requirement to live before moving on.


We are here today to put Kees next to his sister Freyja and so that all of us here can say one more goodbye and so that we can be in peace knowing that the two of them are here together. Now they are here together on earth, and we hope that they are also together wherever they are now.



The end of our Italian vacation

I am nearly at the end of my 3 week Italian vacation. Today I am in Rome. We are flying back home to Amsterdam tomorrow.

Craig is out and about today playing tourist, but I cannot face the heat. It's too much for me now. I'm 28 weeks pregnant and I cannot drag myself all around this big, hot and smelly city to look at the sights (I've seen them before).

We've had a lovely time away. Although it hasn't been entirely stress free. The Italians drive like complete lunatics. I wonder how any of them ever passed their driving tests ... And Italy is not one of the cleanest places in the world. And we missed our 5 star cruise luxury ... (the cruise we were supposed to be on ... but where I wasn't allowed on board because I was TOO pregnant).

We picked up our little campervan in Rome. Then we drove up to Tuscany where we began our Italian tour with a visit to my cousin who lives just out of Grossetto, followed by a visit to a friend who lives on a beautiful olive farm/vineyard in the hills between Lucca and Pisa. Craig climbed the leaning tower in Pisa. We went to Cinque Terre - a beautiful place - and walked the coast/cliff paths. Then we drove across the country to Venice. Always a beautiful city - last time I saw it was in the middle of winter when we had to walk through St Mark's square on boards because the square was flooded!! What a difference. We drove through the mountains from Venice down to Florence for a day of wandering the old city. Followed by a stroll through charming Siena.

Unfortunately we had quite a bit of rain in this first week and a half of our Italian tour, so following our Siena visit we decided to head south.

We drove straight down the middle of the country down to Naples, where we stopped and visited Pompeii. One of those places you always hear about but never really expect to visit. Rather scary with Mount Vesuvius looming over us!!! Then on to Sorrento -- a lovely seaside town south of Naples where we based ourselves for a further six nights. This campground had a great pool, as well as beautiful views of the Naples bay and Mount Vesuvius. No rain here ... just lovely sunshine! We popped back into Naples to visit the ruins of Herculaneum. We visited the island of Capri (where we went to it's highest point and then walked down 800+ steps to the harbour ...). We rented a Smart car for a day and drove along the Amalfi coast - very beautiful. All interspersed with lazy days by the pool with a good book. Alas, we had to leave the sunny seaside to head back to Rome where we said goodbye to our campervan and headed into smelly Rome itself to our hotel.

It's lunch time here now. Craig's still out and about, and I'm having two packs of crisps for lunch. It's all I could get from the vending machine in the hotel, and I'm not keen to go outside. The weather is too hot, and I'm too scared to go anywhere by myself these days. At home, it would be fine, but not in a strange city. (One of the many changes in my life since losing Freyja and Kees ... I had no fears and used to travel the world by myself!)

My pregnancy has been good to me during this Italian vacation. It may have been better if we'd gone a few weeks earlier, as I've been getting tired a lot quicker, but on the whole, it's gone very well. Of course, 28 weeks is a pretty scary time for me. We lost Freyja at 28 weeks. For no reason that the doctors could find. So I guess I'll be worrying (more than usual) in the next few weeks.

Over these last few weeks, people have smiled indulgently at us. At the picture that Craig and I present. At the loving husband and obviously pregnant wife. At the sight of me waddling around Capri Town in 35 degree celsius heat. Or me swinging on a chair lift up a mountain. Or me waddling around the pool with a huge belly. Most people assume that this is our first child ... of course, we don't have any children with us - I guess it's a fair assumption. But for those who ask, I always tell them the truth. I always tell them about Freyja and Kees. I can't pretend. No matter how much everyone else doesn't want to know. Like all those people on public transport, who see me coming, with my huge belly, but quickly look away, because they don't want to give up their seat. It happens ALL THE TIME. In three weeks only one person has stood up and offered me his seat. He was a lovely Scottish gentleman.

I wish I believed in fairy tales. I wish I believed in "happy ever after". But I don't believe. I know it doesn't always happen. I know only too well. I have given birth to and buried two children. Two healthy children who should never have died. And now I'm 40 -- 41 when this child is due to be born. I can't do it again. This is my last chance. And guess what? The chances are that it won't be happily ever after ... That's my fear. This isn't just a baby. This is the REST OF MY LIFE. These last few weeks will determine whether I will get to parent a living child for longer than 7 weeks or whether I will be only ever be a mum to dead children.

Does anyone understand the implications of this????? (I ask, because most people do not understand this. They think there's "always" hope. Well, guess what, for me there's not.)

This is the rest of my life.

Anyway, as you can see, my days are still filled with fear and worry and desperation.

But at least we've had this lovely vacation.